Niccy Birchley

In June 2003 I discovered I was 2 1/2 weeks pregnant with my first child. I was 20 years old. My pregnancy was fine and progressed well up until I was 7 months gone and my legs had swelled so much that I couldn't even get my trainers on without laces in them.

I contacted my midwife as I was quite concerned but she dismissed it as water retention and told me to elevate my legs when I was sitting down.

My son, Cain, was born on October 20th, 2004 weighing 8lbs 6oz. I had an extremely difficult labour as Cain got stuck in the birth canal, was positioned back to back with me and he came out face first. I was in labour for 27 hours.

When cain was 3 weeks old, I was in agony with my ribs. I initially thought I had pulled the muscles there from holding him so much but my parents insisted I went to A & E to get it checked out.

After spending 2 days in hospital without much clue of what was going on, I was told I had Multiple Pulmonary Emboli. I had 7 blood clots on my lungs. I was in hosptal for 7 more days being injected every 24 hrs. with Clexane & taking Warfarin. I then had to take Warfarin fro 6 months after that.

Two weeks after I was disccharged from hospital I went to see a hematologist who ran some blood tests and said he would be in touch with the results. 4 weeks later I got called back and was told that I had a rare blood disorder called Factor V Leiden and was given a whole load of do's and don'ts.

I was also told it was hereditary and that my son had a 50% chance of inheriting it from me. I finished my course of warfarin and got on with my life as normal as possible. 6 weeks ago, November 2006, I was hill climbing and I snapped off the corner of my left knee joint.

Last Monday, 13th october, I underwent an Arthroscopy (key-hole surgery) to have the broken bone removed. They also had to cut off some more of the damaged bone and file it down. I was discharged from hospital on tuesday 14th '06 and told I may have to have another operation to transplant bone into my knee to enable full use of it again.

This monday just gone I was rushed back into hospital with an above knee DVT, after having a scan they found I actually had another 4 clots between the knee I had recently had operated on and my groin.

2 days later the clots had moved another 5 inches towards my lungs. I was given Clexane injections again and I am now back on Warfarin, for life this time. I am only 23 years old and I am nowfacing the decision between risking more clots and having surgery to regain use of my left leg or refusing surgery to save from more clots and hoping that one day I will have some kind of control over my left leg again so that I can continue to bring up my now almost 3 year old son.

I wanted to share my story to get the point across that if you are ever in any doubt about what you are being told my a health professional, dont just accept it and take their word for it. Everyone makes mistakes and you should ALWAYS get a second opinion if you have the tiniest doubt that they may be wrong.

Gut instinct is there for a reason!

Back to Stories







© Deborah Okner Smith - All Rights Reserved Home | Recently Diagnosed | Stories | Resources | Site Map

Translate this page or any part of this website to another language


Root Directory
About
Ask the Doctor
Make a Donations
Educational Materials
The Email Forum
Find a Doctor
Home Page
Links for FVLeiden
Rules for the Email Forum
Site Map
Subscription Manager for the Email Forum
Unsubscribe from the Email forum

Publications
Coumdain information and side effects from Elaine and James. Two members of our mailing forum
Information on Coumadin
Diagnosing Pulmonary Embolism: A Medical Masquerader
Prothrombin mutation G20210A information from Michael Wosnick
The Genetics of FVL, by Jennifer Rosenberg
An Explanation of Factor V, by Michael Wosnick
Midwifery Conference Handouts
OBTAINING MEDICAL RECORDS FROM AN ACUTE CARE HOSPITAL/ER
Giving LMWH shots - from Tamara on the mailing list
Adult Medical Genetics Program
Stories
Stories - Index

Events
Events Schedule

Resources
Resources

Recently Diagnosed
Recently Diagnosed - Index
This site complies with the HONcode standard for trustworthy health information:
verify here.